4.6 billion, that’s the cost of one-time treatment, not a cure
It seems that there are quite a few patients suffering from the same disease.
They must be in the same situation.
So that more people can benefit
Could it be that it was fundamentally impossible to approach?
I usually post a message saying, “Please petition.”
So that various patients and their medicines can be imported.
You can establish a foundation or manage funds transparently.
There must have been….
In a personal bank account where nothing can be verified
Is it right to raise money like that?
I don’t really understand.
There is not a single word about other patients.
The only thing I’m talking about is saving my child…
He said he was a pastor.
In the vest I’m wearing just in case
for other children suffering from the same disease
Mention or mention of rare disease patients
Please pay attention. Without a single phrase
Words to save Sarang and YouTube Instagram
I only see the account…
I thought the same patient commented on YouTube.
Add a photo.
image text translation
Why are you so selfish? What kind of free pass goblin room is the pastor?
Is it Mang? There is a strict procedure. Korea’s Ministry of Food and Drug Safety
Sangul is doing very well. It doesn’t make sense to spend 4.6 billion as is.
Medical expenses in the United States are high. It took about a while to develop it.
Well, it starts with a ridiculous price.
Is it okay if I just take the medicine for love?
Do you mind if other kids die?
The state should require procedures for group phenomenon to occur, like this.
Are you telling me to raise money separately and die if I can’t raise money? this
The method is
People get tired quickly, so only children with disabilities can survive, and not everyone can survive.
Rizzo
And I conducted clinical trials for 5 years with 4 people.
This is a drug that only showed a small improvement in one person. It’s also personal
I can’t tell if the charge has really improved.
The FDA emergency approval drug is
There are countless times. Still, I don’t raise money every time.
If I stayed still, the approval would soon be canceled again and the efficacy of the drug would increase.
This is because there are no cases of death due to side effects.
Yes
Dogmatic and not supported by existing muscle disease parents’ groups
Please be careful because the national march will have the opposite effect.